This week marked the opening of the first interstate AEP Hub with SAHMRI - South Australia’s independent not-for-profit health and medical research institute - joining the network.
South Australians living with epilepsy will now be able to get referred into the hub for advanced testing, free of charge, as part of their participation in the AEP.
“Enabling Adelaide’s medical research sector to engage with national initiatives like the AEP is a key reason that SAHMRI’s Clinical Trials Platform exists,” says Karen Best, Director, SAHMRI Clinical Trials Platform.
“We’re proud to be able to help at all stages of the project’s SA-based activities, from coordinating patient enrolment to making connections for diagnostic testing at facilities like the SAHMRI-based Clinical Research Imaging Centre.”
The AEP (Australian Epilepsy Project) is a multi-year research project at The Florey Institute of Neuroscience and Mental Health that is enabling people living with epilepsy to have access to advanced MRI scans, genetic analysis and cognitive testing.
Professor Graeme Jackson, the AEP’s Chief Investigator, says the ultimate aim of the AEP is to improve the standard of care and change the lives of people with epilepsy.
“Epilepsy is a life-long condition and we need life-long solutions,” says Professor Jackson.
“Using algorithms, imaging and rich data we can extract insights to predict patterns in epilepsy and create individualised treatment plans for patients. This is an exciting new standard of care that we’ll be able to offer people living with epilepsy.”
Now people in South Australia as well as Victoria will be able to attend local hubs as part of their AEP journey with referrals from Queensland and New South Wales set to open from mid-2023.
OJ is a valued member of the Australian Epilepsy Project's clinical trials team - the team that onboard our participants to the study and work with them throughout their AEP journey. OJ is passionate about creating change in healthcare and to contributing to epilepsy research.
Meet Jodie Chapman, one of the Australian Epilepsy Project’s Neuropsychology Research Assistants. She is a Doctor of Psychology (Clinical Neuropsychology) and is passionate about understanding the impact mood and cognitive changes have on a person’s wellbeing.
Vicky He’s research uses MRI (Magnetic Resonance Imaging) to map the location of brain functions. One example of how this works is when asking someone to perform a task such as indicating whether words rhyme - the MRI is able to show which parts of the brain are active during the task.
For the Australian Epilepsy Project (AEP) the pandemic prompted transition from traditional face-to-face neuropsychology testing to teleneuropsychology (TeleNP), enabling continued safe operations during the pilot phase of the study.