Blog
News

AEP Participant: Gary Alway

April 18, 2024
AEP team member

Since his car crash nine years ago, Gary has teamed up with a new doctor and is participating in various drug trials and epilepsy research projects, in the hope of once again gaining seizure control.

“My doctor told me about the AEP and the opportunity to undertake advanced testing [not normally available in a clinical setting]. I did think that having a new MRI scan would be good, to see if there are any changes from the last one, I had.”

What would you say to encourage others to signup as a participant?

“I would tell anyone to go for it as it can only possibly help them and others.”

 

Despite the impact of epilepsy in his life, today Gary is a talented Melbourne photographer who creates beautiful mood-provoking shots of both people and places.

Guardian’ by Gary Alway, pays homage to a friend who has accompanied Gary on many of his photoshoots.

“He’s been a second pair of eyes, but also saved my life multiple times. It is also for everyone else who has helped me over the last nine years.”

 

Guardian by Gary Alway

 Follow Gary’s work on Instagram @alwaysphotos

Ask an Epilepsy Expert: How is epilepsy diagnosed?

We've launched our Ask an Epilepsy Expert series where our AEP team answer common questions about epilepsy. In episode 1, AEP imaging Lead, Dr David Vaughan answers the question: how is epilepsy diagnosed?

AEP Participant: Kylie Staats shares her story

Hi, my name is Kylie Staats, I’m 37 years old and I have had epilepsy for almost my entire life. I had my first seizure when I was four years old, and at that time, nobody knew why it was happening.

AEP Volunteer: Luke Wolfe

Meet Luke Wolfe, a recent volunteer for the AEP’s control group. Earlier this year, his close friend experienced her first seizure and was subsequently diagnosed with epilepsy. Watching her navigate this new diagnosis and its impact on her life left him wondering if there was a more proactive way he could help, other than offering care and support.