AEP Participant: Deborah Loats

November 15, 2023
Sam Jackson

I experienced my first seizure early 2021. I have been fortunate to not have any further
seizures, so have not been diagnosed with epilepsy. However, there were concerns that I
may have neurological or cardiac-related issues post the seizure, as I have a family history of
sudden unexplained death.

I was delighted to be recruited into the Australian Epilepsy Project (AEP) by the Florey’s first
seizure clinic. I have studied psychophysiology, health sciences and worked as an EEG
technician and research assistant, so it felt natural to want to give back and support other
research projects.

I found the testing extremely interesting - it was my turn to be the guinea pig! The
researchers and technicians were very friendly and were happy to answer any questions I

If I’d had to pay out of pocket for the testing included in the AEP, I probably would not have
had the procedures at all. It was reassuring to know that despite no formal diagnosis or
explanation for my seizure, all avenues have been looked at, and I am happy knowing my
data could possibly help benefit others in some way, in the future.

What would you say to encourage others to sign up as participants?
Seizures (whether it’s one, some or many) can really affect a person’s quality of life. The
more people living with epilepsy that participate in the AEP, the richer the data, and the
better the care and treatment outcomes that will result. So do it for science :)

Meet the AEP team - Ojasvi Argawal (OJ)

OJ is a valued member of the Australian Epilepsy Project's clinical trials team - the team that onboard our participants to the study and work with them throughout their AEP journey. OJ is passionate about creating change in healthcare and to contributing to epilepsy research.

AEP Participant: Deborah Loats

Deborah experienced her first seizure in 2021 and was referred to the AEP by the Florey's first seizure clinic. Read about her experience and why she was "delighted" to join the AEP.

Australian Epilepsy Project (AEP) welcomes new Lived Experience Ambassadors

At the recent launch of the AEP Hub SAHMRI, we welcomed Carolyn and Ned Travers, our South Australian Lived Experience Ambassadors, to the AEP team.

SAHMRI becomes part of the AEP Hub network

This week marked the opening of the first interstate AEP Hub with SAHMRI - South Australia’s independent not-for-profit health and medical research institute - joining the network.

Meet the AEP team – Rachel Hughes

Meet Rachel Hughes, Australian Epilepsy Project’s Clinical Research Coordinator.

Meet the AEP team – Jodie Chapman

Meet Jodie Chapman, one of the Australian Epilepsy Project’s Neuropsychology Research Assistants. She is a Doctor of Psychology (Clinical Neuropsychology) and is passionate about understanding the impact mood and cognitive changes have on a person’s wellbeing.

AEP data helping our understanding of brain dynamics

Vicky He’s research uses MRI (Magnetic Resonance Imaging) to map the location of brain functions. One example of how this works is when asking someone to perform a task such as indicating whether words rhyme - the MRI is able to show which parts of the brain are active during the task.

Meet the AEP team – Johann Wise

I am an MRI Research Radiographer.

AEP participant Kieran Champion tells his story

I found the AEP testing very interesting and enlightening. The staff were very helpful in explaining the process of the tests and it was interesting to learn about what was being examined.

Artificial Intelligence and the AEP: Optimising treatment pathways

The Australian Epilepsy Project (AEP) is a multi-year research project focused on transforming the diagnosis and treatment of people living with epilepsy and is turning to AI to help achieve this.

Pandemic prompts improvements in access to healthcare

For the Australian Epilepsy Project (AEP) the pandemic prompted transition from traditional face-to-face neuropsychology testing to teleneuropsychology (TeleNP), enabling continued safe operations during the pilot phase of the study.