Blog
News

AEP Participant: Cindy Morrissey

January 30, 2024
AEP team member

Late 2021, I had an episode whilst at work and was taken to Monash Hospital. I was told I probably had a transient ischaemic attack (TIA) –  a stroke that only lasts a few minutes, so I wasn’t given an MRI or any additional testing. A couple of years later, I was bush walking with friends when they noticed I wasn’t myself. They called an ambulance and this time I was taken to Box Hill Hospital. A week later, during a follow-up consultation with neurologist, Dr Patrick Carney, I was told I could possibly have epilepsy. 

It was at this appointment that Dr Carney informed me of the AEP and asked if I would be interested in participating. The benefits of being a participant means you receive the best treatments available, and quicklyI also like the fact that hopefully my testing results/diagnoses can be helpful for both the project and future participants. 

I found the testing difficult and challenging but understand the reason why it is necessary and was treated extremely well by the AEP team and kept well informed throughout the process. 

I would recommend others living with epilepsy to participate in the AEP as the information gained is not only beneficial to the participant but can help lead to a better understanding of epilepsy.

AEP Research Assistant publishes first paper as lead-author

AEP Research Assistant, Remy Pugh, recently had her first paper as lead-author published in Epilepsia Open. The study explores the cognitive and psychological functioning in adults after their first seizure, but prior to an epilepsy diagnosis or treatment plan. A great achievement, congratulations to all involved.

First AEP Health Economics paper published

The Australian Epilepsy Project’s first health economics paper based on our pilot study data has been recently published. Congratulations to all involved, including Dr Clara Marquina, Emma Foster and the AEP’s Health Economics Lead, Prof. Zanfina Ademi of Monash Uni Pharmaceutical Sciences.

AEP Participant: Chloe Falzon

Chloe was only recently diagnosed with epilepsy after experiencing seizures over an 18 month period. Her initial seizures occurred during sleep and saw Chloe hospitalised a number of times. The results of her scans were inconclusive but additional seizures over the ensuing 12 months lead to her epilepsy diagnosis.