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AEP Participant: Cindy Morrissey

January 30, 2024
AEP team member

Late 2021, I had an episode whilst at work and was taken to Monash Hospital. I was told I probably had a transient ischaemic attack (TIA) –  a stroke that only lasts a few minutes, so I wasn’t given an MRI or any additional testing. A couple of years later, I was bush walking with friends when they noticed I wasn’t myself. They called an ambulance and this time I was taken to Box Hill Hospital. A week later, during a follow-up consultation with neurologist, Dr Patrick Carney, I was told I could possibly have epilepsy. 

It was at this appointment that Dr Carney informed me of the AEP and asked if I would be interested in participating. The benefits of being a participant means you receive the best treatments available, and quicklyI also like the fact that hopefully my testing results/diagnoses can be helpful for both the project and future participants. 

I found the testing difficult and challenging but understand the reason why it is necessary and was treated extremely well by the AEP team and kept well informed throughout the process. 

I would recommend others living with epilepsy to participate in the AEP as the information gained is not only beneficial to the participant but can help lead to a better understanding of epilepsy.

AEP Participant: Darcey Colvin

Darcey was diagnosed with epilepsy about 12-months ago after what seemed like an extremely long year of testing with no results. She recently participated in the Australian Epilepsy Project to gain access to advanced testing (imaging, cognition and neuropsychology), testing that is not normally available as a part of standard care.

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